Tuesday, August 6, 2013

End of a Honeymoon

This may possibly be the end of the honey moon phase.

I must say using www.mycareconnect.com has been amazing. These moms are brilliant! They saw the need to be in the loop about their daughters health needs and made a tool to do just that. Then they decided to share this tool, free of charge, for others to use for their benefit. This year Blaine’s school nurse is also linked in to this tool. She, Brent and I can input information each time Blaine checks his BG, has carbs or insulin. We can add notes for one another to see and his doctors can see the information as soon as it is added. We use this tool daily! I have the app on my iphone and Blaine has it on his ipod (although he has not used it yet). We are able to communicate with his doctors and make adjustments to food and correction ratios as needed without calling or waiting for our every 3 month endocrinologist appointment.

This tool also provides very nice graphs and charts, like the above. This bar graph shows the average daily total of Blaine’s fast acting insulin (Humalog) and slow acting insulin (Lantus) by week. Jumping from an average of 14 units of fast acting daily to 35 may just indicate that his pancreas is no longer dumping its own insulin into the mix! We’ve seen numbers like 317 (three times the normal limit of BG) to 37 (1/3 of the normal BG) in the same day. Definitely some adjusting of food ratios and corrections factors is going on in our house! All you can do is actively monitor and problem solve. There are no vacations from diabetes, that’s for sure. I am very appreciative of these innovative mothers who have made our daily management a bit more bearable.

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